As a teratogen information specialist, I’ve encountered numerous heartfelt stories from women striving to make informed decisions about their pregnancies. One story that stands out is that of Sarah, who embodies the hopes and anxieties many women with Multiple Sclerosis (MS) face.
Sarah’s Journey
At 31, Sarah was diagnosed with Relapsing Remitting Multiple Sclerosis (RRMS) at the young age of 22. Her first relapse was frightening; while preparing for finals, she suddenly lost vision in one eye and felt weakness in her legs, making standing impossible. After a hospital visit and a course of steroids, her symptoms improved, but it took two months to fully resolve. Months later, she received her diagnosis, which felt like a heavy burden. Despite experiencing two more relapses and starting on disease-modifying drugs (DMDs), she managed to maintain her career as a dentist.
Sarah met Tom five years ago at an MS clinic, where he worked as a nurse. They fell in love, and he proposed last year. They began discussing their hopes for a family, with dreams of having two children, ideally a boy and a girl. While Sarah initially felt optimistic about motherhood, her anxiety grew as she contemplated the challenges her MS might present. She worried about relapses during or after pregnancy and how she would manage her condition while caring for a child.
Common Concerns for Women with MS
Sarah’s concerns are not unique. MS, an autoimmune neurological disorder, affects each individual differently. Here are some common questions many women like Sarah have:
- Will MS affect my pregnancy or my baby?
Historically, women with MS were advised against pregnancy, but research now indicates that many can have healthy pregnancies and babies. While there is a slightly higher risk of miscarriage, especially early on, the majority of women with MS deliver without significant complications. - Is there a risk my baby will develop MS?
The risk is low, with studies suggesting that children of mothers with MS have around a 3% to 6% chance of developing the condition later in life. - What are the risks of stopping my DMD while trying to conceive?
Stopping DMDs can increase the risk of relapse, particularly if conception takes longer than expected. It’s essential to discuss this with your neurologist to tailor a plan based on your health history. - Does pregnancy accelerate MS progression?
Interestingly, pregnancy often leads to a decrease in relapse rates, especially in the third trimester. However, many women experience increased relapse rates in the postpartum period. - Can I continue my DMD during pregnancy?
The decision to continue DMDs during pregnancy is highly individualized. Some medications, like glatiramer and interferons, have not been linked to increased risks during pregnancy, but this should be discussed with your healthcare provider. - What if I have a relapse while pregnant?
While uncommon, relapses can occur and are typically treated with steroids. The risks associated with steroid use during pregnancy should also be weighed against the benefits of treating MS. - Should I breastfeed or start my DMD after delivery?
The postpartum period poses a higher relapse risk. While breastfeeding may offer some protective benefits, it’s crucial to speak with your healthcare provider about the best approach to managing your condition during this time.
For more information on fertility and health during pregnancy, you can explore other blog posts like what the hib vaccine protects against, or check out resources from Make a Mom regarding fertility supplements and related topics. For a comprehensive overview of procedures like IVF, the Mayo Clinic provides excellent resources.
Summary
Sarah’s journey reflects the complex relationship between MS and motherhood. While challenges exist, many women with MS can navigate pregnancy and motherhood with thoughtful planning and support. Open discussions with healthcare providers can help address concerns, allowing women like Sarah to pursue their dreams of family.